One More Day!!
We are now 13 days into the 14 days of heavy steroid dosage and it couldn't end soon enough. Over the past week or so our lil man has gotten so swollen and uncomfortable!! He doesn't want to be held or touched and just wants to lay on his own. Bath's which used to be one of his favorites are now very uncomfortable for him and involve a lot of crying instead of splashing. However, we have talked to the doctors and all of this is normal, she said that about half of the babies will act like Logan, being quiet wanting to be left alone and the other half just cry all day, I guess giving the alternative we prefer the side effects we ended up with but either way it is really hard to see.
Since starting the steroids he has gained over a pound and a half which to me just seems crazy. If you relate that to us it would be like gaining 20+ pounds in such a short time, no wonder he is so cranky and unhappy. The smiles have completely stopped at this point but they did say that pretty quickly after lowering his dose (which starts on Friday) he should start coming back to his old self. We will be going from giving him .8 ML each day to .15ML, sure seems like a big change to me!! On the positive side, we still haven't seen any big spasms occur since a couple days after starting treatment so hopefully when we go back for the EEG on the 30th everything will look normal!!
Mommy is in NYC this week for work so Daddy and Titi (Logan's nanny Marcia) are holding down the fort. I sure do miss my lil one and it was so hard to leave but I know he is in good hands! I am just counting down the days / hours / minutes until this is all over and just hoping and praying that all will look normal and we can put this chapter behind us!!
Is this over yet?? |
Mommy is in NYC this week for work so Daddy and Titi (Logan's nanny Marcia) are holding down the fort. I sure do miss my lil one and it was so hard to leave but I know he is in good hands! I am just counting down the days / hours / minutes until this is all over and just hoping and praying that all will look normal and we can put this chapter behind us!!
This breaks my heart that you all are having to go through this journey.
ReplyDeleteI love you
I also pray that this is the answer and all will be normal. Can't wait to meet the little man.
ReplyDeleteSo happy that it seems to be working. Praying that the last few days have gone equally well - or better!! Love seeing pictures of the sweet big boy!
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