EEG #2

July 31, 2014

So yesterday was a big day (as I am sure many of you were aware) as we had our second EEG to see how the steroid treatment went. We got to the doctors office and received many ohhh's and ahhh's over his new helmet, some of the ladies even wanted to take pictures with him! :) We were taken back to the EEG pretty quickly and the technician started putting the probes on Logan's head. I was so proud of him, he smiled and laughed and didn't cry once through the entire one hour process. The technician even mentioned that he was doing better than most of the big kids!!

Hehe, that tickles!

Just hanging out and letting them read my brain!

After getting all set up she went over to start reading the EEG and within about a minute she informed us that it was GONE!! That is right, the Hypsarrythmia is GONE!!! We were so excited, I started tearing up and was just so proud of my little fighter. We still have to wait for the official results to be read and we should have that in the next couple of days but the biggest piece is that there is no more Hypsarrythmia which in turn means no more Infantile Spasms. I am still waiting to confirm with the doctor if this is gone forever or if there is a chance that it could come back and if so what is the likelihood but for now, I am going to savor this one little (or really BIG) win for us!! We had noticed him being so much more interactive, looking at us, playing, laughing, just being so much fun to hang out with that I was really hoping this was the case but getting confirmation is that much better!!

I had asked the tech if she could show me what the old EEG looked like vs the new and I wish I had taken a picture but it is quite a difference. Here is a sample I found on the internet to show you guys what it looks like. No wonder these poor babies stop progressing and end up regressing, their brains are so full of activity they don't have room for anything else!

Normal EEG

Hysarrythmia EEG

Since we didn't get to see the doctor I am not sure when we are supposed to come back at this point. I am sure we will get more information when they call with the results but my hope is that they say we can come back in months not weeks!!

I am just so very thankful for the doctors, this medicine, the fact that we caught this when we did, insurance (with the medicine costing $105,000 alone I can't imagine what you would do without it), the doctor who randomly realized that the steroids helped with the spasms, I don't even want to think of the alternative of what could have happened without just one of the above things happening. I am also thankful for all of you and your positive thoughts and prayers that you sent our way, they definitely helped and please keep them coming as we continue Logan's Journey, you guys really are our Prayer Warriors!!