Hi everyone!! Been a while but we have decided to bring back Logan's Journey for all of you to share in on our ongoing activities. There is so much to catch you all up on but I will try to do my best.
It has been over a year now since I last posted and so much has happened during that time. Little man is getting so much bigger (he is now over 3 feet tall) and stronger every day! He is still not walking on his own yet but he is getting closer every day. Logan is able to pull up to stand on his own and loves to cruise along the furniture, between that and crawling he can get to most places on his own. He is saying more and more words, we are still working on some 2-3 word phrases but they are coming. He has a new walker called the "Crocodile" which he seems to be warming up to and we are hoping that will help give him a little more independence. Some of his favorite things include jumping in his trampoline, puzzles, books, Mickey Mouse Clubhouse and Thomas the train (however we are hoping Thomas is on his way out!).
Back in January we started him in preschool with a group called the Adaptive Learning Center, they sent a facilitator to school with Logan who would help work on his goals set by therapists in a real life environment. It was great to see him around other kids on a regular basis (we went Tuesday and Fridays) and the growth we saw from him during this time was huge. He really loved being around the other kids and I think it was great for him to see what they were doing and try to copy them.
Me and my Buddy at school!
Logan is currently in 5 therapies a week including Physical Therapy, Occupational Therapy, Speech Therapy, Hippotherapy and Aqua Therapy! Phew, that is a lot to read / type and trust me it is a lot in reality too but hey what other 2.5 year old do you know that can say he rides a horse and goes swimming EVERY week??? In March, Logan started the Hippotherapy (that is on the horse, aka the land hippo) and it has been one of his most beneficial therapies to date. The main benefit of Hippotherapy is two-fold, one giving him the feeling of what walking is like and secondly to really strengthen his core, which has been a problem area. He goes once a week and we can already see a huge difference in how he is holding up his body and moving. It has been very fun to see and he is even at the point where he can ride without handles!!
A natural Cowboy!! Must be that Texas blood!!
Another big thing that has happened since we last wrote was that Logan has started Botox treatments. No, not what you are thinking, his forehead is wrinkle free still, but it is actually done in the muscles that have high spasticity, for Logan that is his legs. He has had two treatments so far, one in December and one in April. The December one we didn't see much improvement but in April it was huge!! He got them in his Adductors, Gastrocs and Hamstrings and man he loosened up. The downside of Botox is it only lasts about 3 months and then you have to get it done again, so we go back to the doctor in July and most likely will have another application in August or September. It is a quick, 5-10 minute procedure but it does require for him to be sedated so we usually have to be there at 6am but are home by 10am. Luckily he is quite the little trooper!
So much looser!!
Me & E!
Last we spoke we had just welcomed Erica to our family and man has she (and her kids) become part of the family. Erica has 3 kids, Payton (15), Alex (12) and Bo (8) and they have become Logan's big sister and brothers for sure. Logan ADORES them and they adore Logan and we have all become a big happy Dougley family! (Douglas + Hurley) :)
The Dougley's - Christmas 2015
One more because it is just so darn cute!!
Ok, I think that might be a good quick update of where we are today, going forward we will be trying to update on an "almost" daily basis with what Logan is up to every day and what we are working on. Erica will be taking the lead on the posts but I will be coming in now and then to add some commentary as well. Let me know if I missed anything or if you guys want some more info on any specific piece but thanks for coming back and keeping up with us! I will leave you with our 2015 year in review video and some pictures from the beginning of this year as well. Thanks for being a part of our Journey!! :)
Logan holding Daddy's finger! Another good day in the world of Logan! The most exciting part of our day is that as of last night, they were able to totally ween Logan off his Dopamene (it was regulating his blood pressure) which in turn means Logan got his first meal this afternoon!! They said that he took it really well and didn't have any spit up which was a great sign so hopefully this is just the beginning and we will be able to continue this going forward! (now if only my milk will come in so I can feed him!) Besides that, the cardiologist came in again today and the PDA valve that I mentioned before still hasn't closed. They are going to check it one more time on Friday and if there is still no progress they will try using medicine to close it. We are hoping this will work but if not he will have to have a little procedure where they will go in through his back to manually close it off. Logan's Home Away from Home! When we were there...
4 weeks is so tiring!! Our little man is officially 4 weeks old now! It is amazing how far he has come and how much he looks like a little baby now. The past 4 weeks have definitely been hard ones but it is reassuring to see how far he has come and I know we still have a little ways to go but we have made great progress so far... Things continue to be pretty stable with Logan over the past couple of days, we are still on the nasal cannula and at level 7, so no big movement there. We think that some of this has to do with the fact that he had to be intibated for so long, but the doctor is trying him on some diuretics to see if that may help as well. He said there is a chance that there is some fluid in his lungs causing it to be a little harder for him to get stable on his breathing so fingers crossed that will work, it seemed to be a little better yesterday. As of Thursday night he is weighing in at 4lbs 14.5oz so we are almost to 5 pounds....
Going Home!!! I know I owe you all an update and so sorry it has taken me so long...I think we are just trying to get used to being back home and our new schedule and routine! So...let me rewind and go back to where I left off on the last blog...Day 5! Day 5 was another good one for us...Logan and Mommy slept through the night with no one poking us or medicines being administered and we both woke up nice and rested. We had therapy again at 10 and to say the hospital was quiet would be an understatement...since it was the 4th, we were the only people in the gym and they didn't even have the lights on for part of it. Our poor therapist Brandi was the only one on duty and she seemed to be pulled in all sorts of directions. We first went through our discharge orders, including what to expect, when we can take a bath (not soon enough!), prescriptions, etc...lots of information but all good stuff to get us on our way! After that we did some more therapy, so...
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