Logan's Journey

So yesterday was a big day (as I am sure many of you were aware) as we had our second EEG to see how the steroid treatment went.  We got to the doctors office and received many ohhh's and ahhh's over his new helmet, some of the ladies even wanted to take pictures with him!  :)  We were taken back to the EEG pretty quickly and the technician started putting the probes on Logan's head.  I was so proud of him, he smiled and laughed and didn't cry once through the entire one hour process.  The technician even mentioned that he was doing better than most of the big kids!! Hehe, that tickles! Just hanging out and letting them read my brain! After getting all set up she went over to start reading the EEG and within about a minute she informed us that it was GONE!!  That is right, the Hypsarrythmia is GONE!!!  We were so excited, I started tearing up and was just so proud of my little fighter.  We still have to wait for the official results to b...

So this morning was a big day for us...we administered our LAST shot!!  Through the course of this experience we have had to give our poor little man 43 shots and to know that we can now just enjoy our mornings without having that as a wake-up call is super exciting!  It will be even more exciting if indeed the shots worked.  We go back in on the 30th for his follow up EEG to see if the Hypsarrythmia is gone, we haven't seen / noticed any spasms since the second day of treatment so all fingers and toes are crossed and really praying that we can put this chapter behind us. In my last post I hinted to the fact that there was something cool coming for Logan's helmet and we got it back yesterday and I couldn't be happier with the results!!  When we found out that Logan would need a helmet I started doing some research on how to make this experience a little better for all of us (ok, who am I kidding, really for me!) and I found that there are people who will paint your...

Just chillin' at the beach!  Hi everyone, I am sorry for not writing earlier but things have been pretty busy for us.  There seems to be so much that happened over the last week and a half I am not quite sure where to start! I guess first of all, when Logan went to the doctor almost 2 weeks ago for his check-up we found out that he has broken his first tooth!!  He had been so miserable and not wanting to be touched that we didn't even realize this had happened.  Poor thing, no wonder he was so upset, breaking a tooth and steroids...I wouldn't want to be touched either!!  At that doctors appointment we also found out that Logan's blood pressure was a little high, the doctors weren't overly concerned as it is a common side effect of the steroids and the following day was going to be our last day of high dosage shots.  By this point he had gained about 2 pounds since starting treatment and he definitely looked very uncomfortable and his skin had become so ...

We are now 13 days into the 14 days of heavy steroid dosage and it couldn't end soon enough.  Over the past week or so our lil man has gotten so swollen and uncomfortable!!  He doesn't want to be held or touched and just wants to lay on his own.  Bath's which used to be one of his favorites are now very uncomfortable for him and involve a lot of crying instead of splashing.  However, we have talked to the doctors and all of this is normal, she said that about half of the babies will act like Logan, being quiet wanting to be left alone and the other half just cry all day, I guess giving the alternative we prefer the side effects we ended up with but either way it is really hard to see. Is this over yet?? Since starting the steroids he has gained over a pound and a half which to me just seems crazy.  If you relate that to us it would be like gaining 20+ pounds in such a short time, no wonder he is so cranky and unhappy.  The smiles have completely stopp...

Happy 4th of July everyone!! We have officially been on the steroids for over a week now and had our first check-up Thursday morning.  The doctor was very happy with Logan's progress and felt very hopeful that the treatment may knock this out since we haven't seen any big spasms since last Saturday!  We have seen some little movements and she said that is likely little spasms he may be having but she didn't seem quite as concerned about them.  One of the main reasons we had to go in for the check-up was to test his blood pressure, they said that a lot of kids blood pressure rises while on the steroids.  Well, it turns out that Logan is just like his Mommy in all things blood related...we have the same blood type, no one can ever find our veins and he has perfect blood pressure (Chris was always amazed that during my entire pregnancy and labor my blood pressure was always perfect, not sure the same could have been said about Daddy)!  :) Now that Logan has b...

Over the last couple days there definitely has seemed to be a lot of progress made.  Over the weekend we only noticed ONE episode compared the the ELEVEN he had last weekend and we didn't notice any yesterday!!  Also, he seems to actually be in very good spirits.  He is smiling a little more, sleeping a lot but being really sweet and cuddly while he is up.  I do think that his little belly is getting a bit bigger and his face is filling out some but like I said, he was only at 7% in weight and 67% in height so it is just helping him catch up.  I am so proud of him though, he is being such a lil sport when it comes to the shots...at least one of the three of us are taking them a little better!! Before all of this came about the doctors had decided that it would be best for Logan to get a helmet to help with the shaping of his head, so yesterday we went in to get fitted.  Doesn't seem quite fair that he has yet another thing to deal with but from what every...