EEG Results

We received a call this morning from the Neurologist's office with the results of Logan's EEG.  When we talked to the doctor about the treatment we were doing for the Infantile Spasms, he told us that there were 3 things that could happen after we finished the steroids:

1. Everything is gone and the EEG looks normal meaning Logan has been cured of the IS and Hypsarrythmia.
2.  That the Hypsarrythmia would be gone but that the EEG could still be abnormal indicating the possibility of other types of seizures occurring or developing.
3.  The Hypsarrythmia was still there and we would need to move on to the next type of medicine.

Obviously with these 3 options they go from best to worst case scenario.  Given what they had told us on Wednesday when we were in the office, we knew we could count number 3 out but there still was a chance we would have option 2.  Well, today it was confirmed that they are still seeing some abnormal activity in Logan's EEG (some little spikes as they described it) which means that he is having other types of seizures (thankfully not as extreme as the Infantile Spasms) and he has a good chance of them developing into more seizures as he continues to grow.  They also noticed that they were more on the right side of his brain which I learned today means it affects the left side of his body more.  This does make sense as the left side of his body is much stiffer than the right meaning that most likely there is more damage that has been done to that side of his brain.

Back to PT time so I can keep progressing!!

Because of these results, the doctor wants to put Logan on Keppra, which is supposed to help combat these little seizures he is experiencing.  They said most likely this would be something he will be on for many years as we know with his history that the likelihood for him to develop other seizures is high.  This medicine is much less extreme than the steroids, thank goodness, and is taken in liquid form twice a day.  They said that there aren't too many side-effects except that he may be a little sleepier and moodier but with his teething, we may not notice much of that.

We will be starting the medicine today and then going back in to see the doctors in a month.  The hope is that the Keppra will keep the seizures at bay and let him progress normally from here on out.  They said that usually the next EEG is sometimes in a year or two years after starting treatment but with our history most likely we will have another one in 6 months or so (unless we notice something happening, which fingers crossed, won't be the case!).

Seizures?  What seizures?  I am just feeding myself over here!

The doctor tried to make me feel a little better by saying that this is still somewhat good news that we were able to confirm that the IS is now gone and according to her, it shouldn't come back.  The IS is definitely much worse and more detrimental to his growth than these seizures and since we have caught these so early she is hoping we can get them under control quickly so we can start progressing again.  It wasn't the news we wanted to hear, I would have much preferred option 1 but at this point we will just keep rolling with the punches and do what we need to do to help our little man.  On the plus side, he continues to be happy and smiley through all of this, he sure is a little fighter and is definitely my little hero!  So please continue to keep Logan in your thoughts and prayers as we start this new medication.  Hopefully it will do what it needs to and with little other impacts to him.